What a day!

Well today was the day Laney was supposed to have her MRI... that's right I said supposed... it almost didn't happen. Somehow there was some sort of "miscommunication" between radiology and us... (eye roll). We showed up this morning bright and early 30min prior to our appointment time as directed by the the hematology nurse. As we checked in to register the lady held up a post it that said, "reschedule- Late". Garrett and I both looked at her confused and then we were directed to the radiology dept. where they told us we were supposed to be there 2 hours before our appointment. At this point were were still 45 min away from our appointment time. Of course Laney was not able to eat since the night before and so she was cranky asking me for milk and crying while Garrett had a "discussion" with the man from MRI. (Garrett was told he needed to be respectful when he raised his voice and told the man he had to take time off work) ...(eye roll #2). So after a brief "exchange of words" in the waiting room he told us we had missed our appointment and we would have to reschedule for some time next month. We headed up stairs to see Laney's hematologist since we were supposed to have an appointment there after the MRI. At this point Mommy was crying, Laney was crying for food, and Daddy was pissed!!
As we checked in for our appointment they asked us why we weren't in MRI... we relayed the whole story and watched as one of the doctors picked up the phone walked out of the room and back in a few minutes later saying, "someone will meet you here in a few min to pick you up for the MRI." Of course it was the same guy... elevator ride was very awkward! 6 hours later and a few more bad moments (lost a diamond earring, they forgot to draw labs and to had to poke her while she was awake, and more) we were finally able to bring her home. Raspy little voice from the breathing tube and drunk from the medicine.
The good news is the mass appears to slowly be shrinking and not getting bigger! The latest plan is to just keep watching it. We dont have to go back until May! yay:) Thanks everyone for your prayers today we really needed them to stay sane:) (I will try later to upload the video Garrett took of drunk Laney:)

Then & Now

We are in the process of organizing and saving our photos over the last year or so. As we looked through them we were so surprised at the pictures of Laney. A year ago Delaney was on her highest dose of steroids... she was a fussy eater, was retaining water, not gaining weight, and had high blood pressure. Most of which were side effects from the steroids. Her face was so swollen she couldn't close her mouth and the skin on her cheeks was so tight it was starting to crack. Now fast forward to the present, a year later... our beautiful baby girl is happy... strong willed, but happy:), off all her meds, she eats, and she has finally hit 20 lbs! She is still only in the 8th percentile for weight, but 60th for head circumference! (that explains her balance issues:). I look at these photos with mixed emotions... I won't list them all... it's pretty much every emotion, but mostly gratitude. To God for allowing us to be her parents, and continuing to heal her body, to friends and family for all their prayers and support, and of course to Laney for loving us.














November 2009...






November 2010! (this is what she does when we say "smile")

New Chair & Crazy Hair!

Laney's new chair from Grandma and Pop pop...

This is what happens when Daddy gives her a bath...

and this is the face she makes when you say "smile" ... haha close Laney.

Trick or Treat!

Happy Halloween! As you can see my little Laney was a Seahawks cheerleader for Halloween (daddy's favorite team). The costume was provided by Aunt JoAnne and was perfect! Laney can even throw her arms up cheer "Go stangs" for the Mustangs which is Daddy's football team. She likes to watch the cheerleaders and mascot at the games. She went trick or treating around the block and held a hersey kiss in her hand the whole time... we didnt know and when she got home it was quite a gooey mess. We only got one trick or treater so the huge bowl of candy turned into the best entertainment...if you know Laney you know she is a sorter. She sorts bark at the park and leaves in the yard so a bowl of candy was like her dream come true! She put piles on chairs on steps and everywhere else. Then she would collect all the piles and start all over.

Lip gloss and blush!

Mommy and Laney..."cheese"

Being a cheerleader is serious!

Loves to ride on Daaa dah's shoulders
Let the sorting begin!